European Journal of Endocrinology: Quality of life in 70 intersex women

We have come across a paper archived at the European Journal of Endocrinology that is titled Quality of life in 70 women with disorders of sex development, resulting from a study by the Rigshospitalet and University of Copenhagen. The paper is a reminder of how intersex people are regarded by the medical profession in general, and in the Scandinavian countries in particular.

The paper uses the term Disorders of Sex Development (DSD) throughout, a term that OII Australia finds pathologising and stigmatising.

Objective: The aim of this study was to assess the quality of life and psychosocial well-being in women with disorders of sex development (DSD).

Conclusion: An impaired quality of life and more affective distress were observed especially in CAH patients and virilized 46,XX and 46,XY females. This may be caused by trauma from distressing diagnostic procedures, the chronic illnesses per se, and psychosocial consequences of the disorders.

Distressing diagnostic procedures and more affective distress are the direct result of how medicine treats intersex people.

An impaired quality of life and psychosocial consequences result from how society treats intersex people.