Intersex for allies

Intersex for allies

Intersex for allies

Who are intersex people?

Intersex relates to a range of congenital physical traits or variations that lie between stereotypical ideals of male and female. People with intersex variations are born with physical, hormonal or genetic features that are neither wholly female nor wholly male; or a combination of female and male; or neither female nor male.

Many forms of intersex exist; it is a spectrum or umbrella term, rather than a single category. Some common intersex variations are diagnosed prenatally. Intersex differences may be apparent at birth. Some intersex traits become apparent at puberty, or when trying to conceive, or through random chance.

How common are intersex people?

The lowest popular statistic is around 1 in 2,000 people (.05% of births) but a more likely figure may be closer to 1.7%. This makes intersex differences about as common as red hair.

Are intersex and hermaphrodite the same?

Biologically, no. Hermaphrodites (such as snails) possess fully functioning sets of both “male” and “female” sex organs. This is impossible in mammals. Linguistically, the word originates in the Greek myth of Hermaphroditus who was both male and female, having elements of both sexes.

Some intersex diagnoses have been termed “pseudo-hermaphrodites” or “true-hermaphrodites”. While some intersex people use the term, others find it stigmatising due to that medical history. If in doubt, it is best only used by people with intersex variations.

Do intersex people have health issues?

Like all people, people with intersex variations have health issues. In a few diagnoses, immediate medical attention is needed from birth, but being intersex is not a health issue in and of itself. Natural intersex bodies are most often healthy. Intersex people frequently need hormone replacement. This may be due to medical intervention.

Why are intersex people subjected to medical intervention?

Medical intervention attempts to make the bodies of people with intersex variations conform to ideals of male or female. Current medical protocols are based on the ideas that infant genital surgery and other interventions will “minimise family concern and distress” and “mitigate the risks of stigmatisation and gender-identity confusion”.

Surgical interventions intrinsically focus on appearance, and not sensation or sexual function. Childhood cosmetic genital surgeries and sex hormone treatments are also problematic as children cannot consent to them. Adolescents, and even adults, have also reported pressure by doctors or families to conform to societal norms. Some doctors still believe that disclosure of a person’s intersex status would be too alarming.

Very many intersex people suffer the physical and emotional effects of surgery, and related shame and secrecy. At a fundamental level, homophobia, intolerance and ancient superstitions underpin contemporary mistreatment of intersex people.

What is DSD? Is this the same as intersex?

In 2006, the medical community replaced the term intersex with “Disorders of Sex Development” or DSD. DSD reinforces the idea that intersex traits are individual medical conditions or disorders that need to be fixed.

Today, some intersex people use the label – especially those who were taught DSD by their parents or doctors since the term’s inception. Intersex people are free to use any label, but the term intersex has become even more accepted and widespread today.

We believe that stigmatising language leads to poor mental health, marginalisation, and exclusion from human rights and social institutions. The term intersex promotes equality and human rights for people born with atypical sex characteristics.

What gender identities do intersex people have?

Intersex is a lived experience of the body and intersex people have a broad range of gender identities, just like non-intersex people. The identities of people with intersex variations may sometimes not match our appearance. Having a non-binary gender identity does not automatically make someone intersex.

Are intersex people transgender or gender diverse?

A minority of people with intersex variations change gender, and some may self-identify as transgender or gender diverse. Most intersex people live in the sex they were raised, but some will not fully identify with their assigned sex. This is part of the intersex experience, but it doesn’t make us trans or gender diverse.

Intersex bodies have diverse physical sex characteristics; many intersex people have an experience of involuntary medical treatment to impose stereotypical sex characteristics, or are at risk of this. This makes descriptions of intersex people as “cis” or “cisgender” problematic.

Are intersex people gay or lesbian, or queer?

It depends on the individual, how they define their gender and identity, how they present, and who they form relationships with. Every intersex person is different. Some people with intersex variations are LGB or queer, and some are heterosexual.

However, LGBTI activism has fought for the rights of people who fall outside of expected binary sex and gender norms. Intersex is part of LGBTI because of intersex status and a shared experience of stigma, not because of sexual orientation or gender identity.

What are intersex activists’ goals?

To raise awareness, and achieve an equal place in society. We seek the right to bodily autonomy, the right to a life without stigma and discrimination, and the right to a life without shame and secrecy.

How to be a good ally

Consider what you do to support intersex inclusion in health and human rights initiatives.

Change your language and frame of reference. Intersex status is distinct from sex, sexual orientation and gender identity. These are each recognised separately in the federal Sex Discrimination Act.

Put people with intersex variations and intersex-led organisations front and centre when talking about intersex.

Many medical studies of people with intersex variations explicitly identify gender identity issues and non-heterosexual behaviours as reasons for medical treatment. Non-consensual surgery is an LGBTI issue as it shows what can happen when non-heteronormative people are established to be “born this way”. Ally with our call to end normalising interventions on intersex children.

Include intersex in education and service access policies, and in employment, diversity and inclusion, and anti-bullying policies.

Adopt federal Guidelines on gender recognition, and offer everyone F, M and X options if you have to record gender in your workplace. Go further and support multiple options. Consider whether your workplace needs to record information on sex, gender and title. Can you offer an option to opt out?

People with intersex variations should be included in campaigns for marriage equality, but intersex people are not included in same-sex marriage. Marriages in Australia have been annulled on the basis that one party was neither fully male nor fully female.

Follow and share intersex issues on social networks.


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This document is based in some parts on an Intersex for allies document by Hida Viloria and Claudia Astorino of OII-USA, with permission. We also acknowledge a 2008 FAQ by OII and a 2003 FAQ by the Portland Intersex Initiative. Thanks to Teddy Cook and other staff of ACON for help developing this resource.

Related resources

Employers' guide to intersex inclusionEmployers’ guide to intersex inclusion developed in collaboration between OII Australia and Pride in Diversity. Written by Morgan Carpenter and Dawn Hough, the guide is kindly sponsored by IBM. A world-first, the guide presents information about intersex for employers, including:

  • An introduction to intersex.
  • Intersex bodies, identities, and inclusive language.
  • Disclosure, medical issues in the workplace, and travel.
  • Protections related to “intersex status” in Commonwealth law.
  • Information for diversity and inclusion professionals.
  • Top 10 ways to be an intersex ally.
  • Information for parents of intersex children.
  • Additional information and a glossary of terms.

Making your service intersex friendlyMaking your service intersex-friendly” is a short guide to help services build intersex-inclusive practice. It helps organisations and businesses to better understand intersex, and respond to community needs. Businesses and institutions will find ways of making services inclusive and respectful, including in data collection. The following issues are addressed:

  • Who are intersex people, and what do intersex clients need?
  • Data collection on intersex, sexual orientation and gender.
  • An example intake form.
  • Anti-discrimination law.
  • Disclosure and speaking up.
  • Inclusive language.
  • Body diversity issues.
  • What health issues intersex people face.

Information for parentsYour beautiful child“, a guide for parents, aims to help new parents (and potential parents), to welcome the birth of a child with atypical physical sex characteristics, and find the support and information they need to feel confident about the long term future of their child.